15 days until Wyatt's palate repair. I am so nervous.
I've already booked a hotel in Denver, called the insurance company to make sure the authorizations are through, booked a hospital tour and ordered special bottles for post-op and pre-registered Wyatt.
I keep thinking there is more I should be doing, but there's nothing else. I just have to sit and wait for the day to come. I'm dreading post-surgery. Poor Wyatt. I just feel so bad for him.
Here's what I know right now.
Nov 13
We'll drive to Denver and spend the night in a hotel.
Nov 14
5:30am check in at the hospital and meet with anethesiologist. We're not allowed to give Wyatt his morning bottle - he has to have an empty stomach before surgery.
7:30am Wyatt will be put "under". One parent will be allowed to stay while this is done. The surgery should go for about 2 hours. We'll spend the night at the hospital. We will be sharing a room with another patient. There is only room for one parent by each bedside. Eric's talking about sleeping on the floor. I don't know what we're going to do because neither of us is going to want to leave the room. Then we'll have to drive home (1hr) and go to base to get pain killers. The hospital doesn't issue prescriptions.
Luckily, I have CleftAdvocate and they have supplied me with a packing list for the hospital and ideas to keep Wyatt happy. At least I feel as prepared as possible - I guess.
I started this site in 2005 after our son, Wyatt, was born with a cleft palate. Over the years the posts became less about Wyatt's condition and more about every day life. Seven years later, its a place to chronicle my journey as an Army Wife and a working mother of two children struggling to find balance in life.
Monday, October 30, 2006
Thursday, October 26, 2006
Can You Believe Its Snowing?!
Sign Language Play Group
Every Thursday Wyatt and I go to play group and have a great time with the other mommies and kids. Teaching Wyatt to sign is suppose to help encourage him to speak after his surgery. Statistics say that babies that sign are more likely to speak sooner and use a larger vocabularly. We'll see if it helps - even if it doesn't its been lots of fun. So far Wyatt can sign "light", "drink" and "all done".
Adventures of Wyatt
Playing With Chase
Playing With McKenna
Wyatt's First Flight
Tuesday, October 03, 2006
Speaking At Early Intervention
My first presentation went well. I spoke to case mangers that meet with parents in the local area and help them manage their children's medical needs. They said they couldn't tell it was my first presentation, that I was inspirational, that my welcome letter to parents was well written and that they'd like me to speak at another meeting. I am on the books for the January quarterly meeting for service providers that are used by Early Intervention. The director actually said she'd like me to present to a few other organisations that she sits on the board of. I am so proud. I just feel so good about it and so good about myself. It was amazing how easily the words came. I explained my expereince and how wonderful everything was but still how overwhelmed and alone I felt. I explained all the challenges a parent faces and how it is so important that not only the child is receiving proper medical care, but that the parent has an outlet and support of other cleft parents. I explained how cleftadvocate.org changed my life and gave me the strength and information to make decisions for my child. They actaully received my words with open arms. It was amazing. I can't wait to speak again.
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