Wednesday, August 09, 2006

X-Rays, Opthalmologist and ENT appointments


It was a full day on Monday. We left at 9:30am and got home at 6pm.

X-Rays: We had to get the x-rays of Wyatt's skeleton to help the geneticist diagnose him with SED. The techs tried to ask me to leave, however, they didn't know what they were dealing with. I refused to leave the room and told them there wasn't any reason I shouldn't stay in the room as I had been in several radiology labs since Wyatt's birth. I was annoyed that they might have been able to get a less stubborn parent to leave. All parents should have the option to stay with their kids. Anyway, the techs said that he was the best baby they have ever had to deal with. No screaming and just a little bit of fussing when they turned him on his side and held him down. The process took about 30 minutes.


Opthalmologist: We went to see the eye Dr and I liked her more than the last one, however, she still didn't have the best demeanor. I don't mind dealing with her though. She didn't find short sightedness like the first Dr., she didn't find his eyes complately normal like the second Dr, instead - she found astigmatism in one eye. So now we are delaing with 3 different opinions. All the opinions lead to different genetic conclusions. So this is very frustrating. I trust her though - she has a background in genetics and seemed very knowlegable. She said she agreed with the our geneticist - he likely he doesn't have Stickler Syndorme and more likely that he has SED. To me, they are both the same thing with different names - either one would be a nightmare diagnosis.

ENT: The audiologist says Wyatt's hearing seems to fall within the normal range. She said its hard to tell at this age and that we'll have to keep bringing him in for checks. The ear Dr said that one of Wyatt's tubes has fallen out and that he will need to go back into surgery to replace it. I was upset to hear this, but what can you do? Ear tubes fall out as the kids grow.