We went to the Opthalmologist yesterday and she reported that Wyatt's astigmatism has gotten worse. I was kind of surprised as I haven't noticed his eyes crossing or him not being able to see things. I was so sure that she was going to tell me it had cleared up and that she'd see us in 6 months.
Instead, she said she also noticed that Wyatt has small optic nerves. (I sat there calmly and thought to myself "What the hell does that mean?") Well it means Wyatt has to get an MRI (brain scan). She wants to see if Wyatt's cleft extends into his brain - which is called a midline abnormality. She was surprised that no-one has ordered one yet. OMG! I just about freaked!
I did some reading and talked to some other moms and as far as I can tell, the middle of the brain is the hormone section. Which is why the eye Dr suspects an issue. Lack of hormones can cause lack of growth - including the optic nerve. She was also going off of the geneticist's concern that Wyatt isn't on the growth charts - perhaps he's missing growth hormones...hmmm
So I got my act together today and went to the Dr to get my referral to get my skeltal x-ray done, called the genetics lab to get the authorization for the blood work on Wyatt done, called teh hospital to make sure the MRI was scheduled.
This is a new problem I don't want to deal with. All I want to know is WHY does he have what he has! That's it - don't tell me you've found something. You know? But I suppose it would make sense if he had a midline cleft that he has midline abnomalities - no one warned me though. I hate being taken off gurd.
Anyway, I'll keep you updated.