As you know I am a
Pathfinder for
CleftAdvocate. That means that I am listed on the website as a resource to other parents in
Colorado. I was very excited to become a pathefinder last Aug 2006. Per my earlier post, had my first speaking engagement at
Early Intervention in October 2006. The Director was very supportive of my cause and asked me to return to speak in Jan 2007. With Wyatt's birthday, his surgery and the holidays, I decided to lay low until the new year.
So in Jan, I spoke to 25 speech and occupational therapists. From this meeting I was asked to sit on a Parent Advisory Committee for the new Children's Hospital being built in town. We meet once a month with the Managing Director of the hospital regarding ways to educate staff and parents on "family based" care. This term means that the Drs should involve parents in decisions, rather than simply informing them on how they (the Dr) will be proceeding.
Being on the committee got me an audience with the local cleft team. The Managing Director gave the name and number of the person to contact and told me to tell them that she had referred me. It worked. I have an appointment with them in May to discuss how I can be an asset to them and to learn how their clinic works since I only have exereince with the team in Denver.
I spoke at the hospital's pediatric rehabilitation center to another 20 private occupational and speech therapists in Jan/Feb. So far, in 3 months, I have been contacted by 5 families. Really, my main hope was that my packets with the cleftAdvocate information would be distributed so that parents could go to the website for support. To personally touch the lives of people in my own community is way beyond anything I could have hoped for.
Recently I was asked to sit on the Local Interagency Committe of Colorado (LICC). This committee has reps from each of the local (city/county) agencies so that all of the different organizations are on the same page. I attend my first meeting next month.
From this the state paid for me to attend an overnight Parent Leadership Retreat with other parents doing outreach in their communities. We came from all over Colorado. We learned about leadership, and then we focused in on our own missions and set up goals to accomplish them. It was a powerful experience. We meet again in May to give each other an update on our progress. Can you believe that we are so lucky that the state actaully provided this training for us?
This week I am being sent to Glenwood Springs for a meeting on the state level. Eric and Wyatt are coming with me as Glenwood Springs is a hot springs resort in the ski country. We thought it would be a nice getaway before Eric leaves for his 6 weeks training California. I am so excited.
So anyway, its been amazing. I'm loving every minute of it.