We went to Birmingham last Thursday to see the cleft team. Eric was unable to come. I had a girlfriend who also has a 3 month old come with me. We had a great trip and the boys were fantastic! We stopped every 1 - 1.5hrs for an hour and that worked perfectly - it was slow, but enjoyable for all of us.
Weight: 11lbs 5oz Height: 22inches
The audiologist found fluid on both ears and scheduled Wyatt to have his ears drained and tubes put in on Feb 15. Its apparantly a routine procedure that doesn't take very long and quickly heals. I am trying to get the surgery booked down here though so that Eric can at least be close by and so we don't have to do another 3 day trip. Even though the last trip was pleasant, Wyatt didn't eat very well which as we all know causes weight loss - not good.
The geneticist said that Wyatt's genetics tests came back negative on all counts. This means that he does not have any other hidden or undiagnosed syndromes - HUGE sigh of relief. He said that he is still going to diagnose Wyatt with Stickler since that test only has a 70% accuracy and the clinical signs point to him having it. He thinks I am the carrier of the mutated gene (I'm short, have big, round eyes, and am short sighted) I have to go and get a full skeletal x-ray which will show him something else to help prove his case. I haven't had time to look up all the terms he gave me yet. So this saga goes on unfortunately.
The surgeon was very happy with Wyatt's weight and said if we had been staying in Alabama he would have scheduled Wyatt for surgery in August. He was fine to let us keep Wyatt's nasal feeding tube in and gave me a BIG pat on the back. He said its paid off and that he did not think Wyatt needed a G-tube as I was obviously coping very well feedings. It felt so good to get such positive reinforcement from the surgeon. I have been killing myself to keep on top of things and I felt so relieved that my hard work hasn't been for nothing.
The nutritionist also gave me huge kudos - she was so excited that I am still managing to pump breastmilk for Wyatt. She taught me how to wean Wyatt off of the tube - which will more than likely take months. I will probably begin this process after we move to keep things managable around here.